Writing Love Stories

Figuring out how to write about my kids can be tough. In one sense, their story is my story. I have a lot invested in them and pretty much everything that happens to them has an effect on me. Much of it involves me. But, in another even more, you know, accurate sense, their story is their own. Walking the line between respecting their privacy and being able to write about my own life (which is usually intricately intertwined with theirs) can be tricky sometimes.

Plus, it is so fun to write stories about them and it makes me sad when I can’t write about something funny they did.

As they have gotten older, their stories have evolved from being ours to being theirs. I’m trying to respect this and make sure that I am not co-opting their beings unless I am doing it for a good reason. One of the good reasons I write about them is to keep a record for them. I hope that they will read this blog sometime and be able to see how amazing I have always found them all to be. I’ll co-opt for that.

Another reason is to educate or give support and sometimes I’ll write about my kids in order to get support or advice. Then there are times when I write just to entertain. Although there are some damn entertaining stories that haven’t passed my Older Kid Privacy Threshold Test, which irks me to no end.

I’ve always said that I write as if the person I am writing about is reading over my shoulder. That doesn’t mean that I won’t write things that will upset people, but I only write things that I am okay with the subject reading with my name attached as the author. At this point in my life, that means I don’t write things about my kids that would embarrass them or make them sad.

This is one of the reasons why you see less of my kiddos here on this blog. Well, that and because they are in school more often than they are at home, which means that it is their teachers who are probably getting the really good stories about them—although I do prefer that they don’t blog about my kids. Can you imagine? Like, http://thereisthiskidnamedQuinninmyclassOMG.blogspot.com

As it follows, there is also a lot more about me here lately. I’m hopeful that I come across as a bit of a narcissist because of this. (<—sarcasm)

But mostly I’m hoping that I can give my kids a written love story to them. Because that is the ultimate reason behind what I do here.

Raising-Cubby-by-John-Elder-Robison

This post was inspired by Raising Cubby: A Father and Son’s Adventures with Asperger’s, Trains, Tractors, and High Explosives by John Elder Robison. Robison does an excellent job walking that line of respecting his son as he manages to write funny, charming, and interesting stories about him. Even more relevant to my parenting experience, both father and son are autistic. Join From Left to Write on March 12 as we discuss Raising Cubby. As a member, I received a copy of the book for review purposes.

I Have Several Things To Tell You…

1. You guys are great. Thank you.

2. Here’s something. So. You all know that I’ve been running (because I won’t shut up about it). Today I went for a run right after lunch in weather that was unexpectedly much warmer than I expected it to be while I was wearing too many clothes.

Anywho, long story short, I was less than a mile and a half into my run when I decided to give in and turn the run into a walk. That is not the problem.

You may know that I am a slow runner and that I am working on bringing my speed up. My medium-term speed goal is a 12 minute mile. So I was delighted that my speed on that 1.43 miles was an average of a 12:06 minute mile.

Then I walked the rest of the way home at a 13:53 minute mile pace. This is also not the problem. The problem is that I look at my distance log and this is what I see:

Side note: I know it's not really *that* much, but I'm going to have more than 50 miles this month! Yay!

Side note: I know it’s not really *that* much, but I’m going to have more than 50 miles this month! Yay!

If you look at the 23rd and 24th, when I ran slightly longer distances not on the treadmill (on which I do intervals, so a slower average), my pace was more than a 14 minute mile.

WHY DO I WALK FASTER THAN I RUN?

Should I just walk? I know I slow down when I get more tired after a few miles, but COME ON. How slow must I be running those later miles if my average is 14+ minute miles? What is happening?

I mean, I KNOW what is happening is that I keep trying and the longer I run, the faster I will get, but I don’t understand.

I just had to get that off of my chest.

3. I am SO excited about this next thing. I am a new contributing writer over at Autism Women’s Network and my first post went up Tuesday. How cool is that?

I wrote about my autism diagnosis and how I feel like Jack gave me a tremendous gift by helping me see myself in a clearer light. Please go check out my article over there: The Gift of Self-Knowledge.

4. My mom has been in town visiting and is actually leaving Wednesday, much to the chagrin of my children. I wrote about how her visits help me out over at White Knuckle Parenting: When Nana Comes to Town.

5. I would like to reiterate that you all are awesome.

Safe

I’ve been feeling really overwhelmed lately. I’m not sure why, but things have been pressing down on me and it’s been tough to get stuff done and operate at a hundred percent.

I don’t know that I’ve been exceptionally busy or had an exceptional number of demands on me, but things have felt exhausting.

A few weeks ago I started seeing a new therapist. My first session was at 7pm on a night that I had been busy all day. I had driven in and out of DC. I hadn’t been alone all day long. I’d rushed from one place to another. I’d been through an emotional therapy session earlier that afternoon with the family therapist that my kids see. It wasn’t a bad day, but I hadn’t had any down time.

By the time I headed out for the appointment, I was wrecked. Not five minutes into the session, the therapist said something about his office being a safe place and I burst into tears.

Even less than a year ago, I would have called myself an idiot and then felt stupid for crying the first time I met this guy. That particular night, I was able to recognize why I started bawling. First of all, I’m kind of an idiot. That’s okay. But mostly I realized that my day had just been too much and I had been pushed past my limit. And when he said I was safe? That means a lot to me.

When people ask me what my autism diagnosis does for me, this is one of them: It gives me the self-knowledge to understand why I react to things the way I do and it allows me to go easy on myself for those reactions. If I were smarter, my diagnosis would probably make me realize I should schedule my days so I don’t end up in meltdown mode at 7 pm.

It has also made me think about what I consider to be safe—and how much I value those things. When I talk here about safety, I’m not referring so much to physical safety, but mental safety. Safe means a place I can be myself. Safe means a place where I can make a mistake and it’s okay. Safe means a place where I don’t have to be ON. Safe means a place where I don’t have to hide parts of myself. Safe is where there are no unexpected, unreasonable attacks—interpersonal, sensory, what have you.

Hopefully safe places stay safe. There is nothing worse than a safe place that suddenly becomes unsafe.

Safe can be a person; safe can be a place; safe can be a situation or a moment. Unsafe can also be a person, place, or situation; unsafe can be an email account that gets unkind messages; unsafe can be a ringing telephone, or an event where I don’t know what to expect, even with friendly people in attendance.

There are people I absolutely love, but who aren’t safe. There are also people that I feel safe around that I am not particularly close to.

Unsafe places are not necessarily to be avoided. They just require a lot more effort on my part. Sometimes unsafe places are to be avoided and that is when they edge into where those unexpected, unreasonable attacks appear.

There can be safe places online as well. This blog has been such an amazing safe place for me and I want to thank all of you for that. I am constantly amazed by how supportive you are, and I appreciate that so much. Even when people have disagreed with me, this space has never become unsafe. I think that’s awesome.

I wrote a lot of this post a long time ago, after that evening with the therapist, but I didn’t publish it because it felt too…well, too unsafe. I decided to put it into the world after a space that wasn’t safe exactly, but was at least neutral, become decidedly unsafe. It’s nothing I won’t get over. I’ll build another wall and put up more defenses and I will be more cautious in trusting that type of space again.

I spend a lot of time worrying about doing and saying the right thing. Frankly, even admitting that I worry about that seems like the wrong thing to say. (I think the right thing is supposed to be, “I don’t care what anyone thinks about me.”) I rehearse things I am considering saying or writing before I utter them and I run over conversations in my head after I have them. I don’t think I’m alone in that.

It’s okay though because I am lucky to have several enduring safe spaces in my life, including some stellar friends and my home, which is almost always entirely safe. I think my safe people know who they are and how much I appreciate them. That’s why I’m publishing this post now. For those people—and for you. I want you to know that I appreciate you too—that you have given me this place that we share. Thank you.

I Hate New Year’s Eve

I feel like I should write something for New Year’s Eve because everyone is all over Facebook and stuff being all, “Grateful for family and friends! I hope 2013 is awesome for everyone!” and I’m like, “That is nice and all, but I just really need this night to be over so everyone can just chill the fuck out and stop being loud and obnoxious.”

See, I’m in New York, which is maybe the dumbest place to spend New Year’s Eve if you hate people and hate noise because you have to accept that people are going to be loud and you’re the asshole if you call the front desk over and over to complain about noise on the biggest party night of the year. Even I get that.

Alex is at a concert and I am tapping my foot impatiently waiting for the movie my kids are watching on TV to be over so I can make them go to bed and I can put on headphones and a movie and block out all the noise of younger, more fun people.

I figure that I’ll at least have a few hours of quiet when everyone is out partying, right?

New York is nice and all, but I don’t know how people live here. I would be the biggest ball of stress you ever saw. We’ve had a really fun vacation, but I am rapidly losing my ability to cope. I can’t wait to be back in my house, where I control who shares walls with me and the most obnoxious thing I have to contend with is Alex’s continued insistence on breathing when he sleeps.

Have a wonderful New Year! I am very grateful for all of my friends and family and I hope that 2013 is the best year yet for all of you.

But, fuck, let’s just get this night over with, okay?

Autism is Shining

Last week was hard, wasn’t it? There was so much ugly and sad and angry and heartbroken. It was a terrible week. Weeks will continue to be terrible for 27 families and those that loved them in Newtown. Like you, I have been trying to send my love to them and wishing them peace.

Yet during all of this, there has been a terrible undercurrent in the autism community. After Newtown, Asperger’s and autism hasn’t just been misunderstood, it has been vilified. People in the community are afraid. Parents are afraid that friends, family, classmates, teachers, and strangers will fear and hate their autistic children, just because they are autistic. Adults are afraid that neighbors, coworkers, friends, and employers will fear and hate them just because they are autistic. Allies are afraid that their efforts to share awareness and acceptance will be overshadowed by this very fear and hate.

There are examples of this already happening that have been circulating through the autism and autistic communities. When people with autism, their parents, and their allies just want to mourn Newtown with the rest of the country, we have been left having to defend ourselves instead.

This is why a few wonderful people, people I am lucky to call friends, have started Autism Shines. Hundreds of people have shared photos of themselves and their children to tell the world what autism really is. It is a page FULL of love. I have seen some of you and your kids there. Every photo I’ve seen has made me so very happy, which is a wonderful thing to be this week.

This is autism.

This is autism.

this is jack

This is autism.

Jack looked at his photo just now and asked me to put it on the internet. Then he asked me to print it out. We just went and taped the photo over his bed. He is proud of who he is. PROUD. He shines. I want him to grow up in a world where he can stay that way—and where other people see that shine too.

Thank you to the people behind Autism Shines. Thank you for putting that good into the world.

Crazy Hair

Today was Crazy Hair Day at Quinn’s school, which was perfect because, well, Crazy Hair Day was made for Quinn.

Some kids put colors or glitter in their hair. Some shaped their hair into mohawks or wore funny wigs. The principal put her hair in several small ponytails all over her head (which was awesome, but distracting at the meeting I sat in with her today).

But Quinn? Well Quinn just made his hair a little bit EXTRA QUINN and he was good to go.

Quinn Einstein

He looked a little bit Einstein-y, which I approved of.

I will admit to teasing his hair a little bit, but I knew that it would settle into normal crazy. Quinn says that at some point during the day, he made his hair “good” again because he was tired of it being crazy. Honestly, I couldn’t tell the difference.

I brush that kid’s hair, like, twenty times a day. He is on a strict shampoo/conditioning regimen, but even so, there is something about his hair that rebels. It is fluffy at the same time as it is matted. It is…problematic. The back of his hair looks like this next photo no matter how many times a day I brush it.

the back of Quinn's head

I have this photo because Quinn wanted me to take it so he could see the red in the back of his hair. He is very vain, that Quinn.

That red hair is a big part of the reason why his hair is so out of control. If you say the words “haircut” in front of Quinn, he will immediately start screeching and clutch his hair and start yelling about wanting to keep the red.

(Red, Sherry. Red.) <—Sorry. Everyone but old college chum Sherry should ignore that.

See, Quinn has been getting crazy attention for his hair since he was a baby. Like, literally, he was four seconds old the first time someone commented on his hair. Consequently, he seems to think his hair is the source of all his power and refuses to have it cut.

At first I was on board with this, because I like long hair on boys (we all know that long-haired dudes are the coolest, right?), but then it got all Crazy Hair Day Is Every Day on us and I just want to take Sir Screams A Lot to get his hair cut, but now he won’t go.

I mean, really. He got home from school, I brushed his hair neatly to the side, he touched it once, and this is what happened:

Quinn's "neat" hair.

It’s shiny at least.

I don’t know if I have anything to add to this long treatise on Quinn’s hair other than HELP!, but I feel like I had to mention it, because it consumes about 38% of my mental energy at all times.

I do have one more thing to say on the subject of hair. I’ve been trying to not mention this, because it makes me seem rilly rilly shallow, but you know what I was really thankful for this Thanksgiving?

My hair. My hair used to be stick straight and then I had kids and it got curly, but weird curly and I’ve wanted to get it straightened for years, but it’s super expensive and I didn’t know if it would work and then a friend of mine found a place in my area that does Japanese hair straightening for less than it generally costs and I went and had it done and I have never been happier in my life.

My hair is like this whole other entity now that makes me so happy. People tell me my hair looks pretty and instead of being all modest and “Oh! Thanks!” I’m like, “I KNOW!! IT’S SUCH GOOD HAIR, ISN’T IT?!”

Life changing, people. Life changing.

This next photo is how my hair looks when I let it air dry. I don’t have to use a hairdryer or a flatiron or anything. I AM HAPPY ALL THE TIME NOW.

Thumbs up, Stimey!

That’s my thumb in the left corner being all, “This hair is GREAT, y’all!”

Phew. I feel better. I felt like I was keeping this big secret from you all because I hadn’t mentioned the GREAT NEW THING that had happened to me because it made me look like a narcissist, but it has entirely changed the way I feel about my head. Now I’ve told you about it and it’s done so I don’t have to mention it again. Thank you.

*****

In less shallow, but equally self-obsessed news, I wrote “Do I Have Asperger’s?—Adult Autism Diagnosis” about my Asperger’s diagnosis over at PokitDok. I write about this regularly because I get emails and messages all the time from people looking for diagnoses and when I was looking for how-to information a few months ago, it was really hard to find. Know that if you’ve been thinking you have Asperger’s and want a formal diagnosis, you aren’t alone. And feel free to email me. :)

An Invitation and a Link

Invitation: Wanna go to a baseball game with Team Stimey? It is autism awareness night at the Bowie Baysox baseball game this Friday. Jack’s hockey team has a block of tickets available for this game, which starts at 7:05pm. All tickets are $7 each and are for great box seats right down by the field.

Any of you are welcome to come. You don’t have to have a Cheetahs player to come. You don’t have to have a kid with autism to come. You just have to want to have a fun night out at the ballpark. Profits from the ticket sales go towards a tournament between the three local special hockey teams that takes place over the holiday break this December.

Also, it’s my birthday on Friday, so you can celebrate my birthday with me too. Yay, me!

If you’re interested, email me at stimeyland (at) gmail (dot) come and we’ll figure out a way to do a ticket/money exchange.

Link: Why (and how to) pursue an adult autism diagnosis. You know. According to me.