Sam Moves Onward and Upward

Sam graduated from 5th grade today, which means he’s headed out to middle school next year. (He also got a packet of homework from said middle school in the mail today, but I figured I wouldn’t tell him about that until next week.)

Oh, I'm sorry. I mean, "He was promoted from 5th grade..."

Oh, I’m sorry. I mean, “He was promoted from 5th grade…”

We headed off to his graduati— promotion ceremony this morning, which I thought would be cool, but no big deal. It totally surprised me when I had to fight back tears. The ceremony was really nice. Each student had written one or two sentences thanking someone who had helped them in their education and the principal read each of them as they got their certificates.

Some kids thanked their parents or siblings. Some thanked teachers or other staff. Sam thanked his instrumental music teacher for helping him to “get the courage to play a solo and become a musician.” The whole thing was really incredibly touching—up to and including the song at the end that was all about being different and being okay. [sob]

(It would have been more touching had the jerk in front of me not held his iPad up in front of me for much of the ceremony to take video. Seriously. People who think they are more important than everyone else in the room are incredibly frustrating. This guy’s phone also rang (loudly) TWICE and then he HAD A CONVERSATION ON THE PHONE TWICE during the ceremony. It was truly obnoxious and a good lesson in why I hate most people.)

Afterward, the school had a “clap out” for the 5th graders where all the other students and the parents gathered and, well, we clapped as each student had his or her name called and they had their moment to leave the school in front of everyone.

Some kids danced across, some twirled, some were super silly. Sam set a land speed record.

Some kids danced across, some twirled, some were super silly. Sam set a land speed record.

The kids in Sam’s program have been all together in the same class for two years, so the group was pretty tight. A couple of the parents were so kind as to host a party for Sam’s class at one of their houses. It was a really nice end to the day and the year.

Plus, there were chickens at the party.

She was soft and nice. I liked her.

She was soft and nice. I liked her.

It was also at the party that I realized that the top of Sam’s head has reached nose height on me. I find this unacceptable.

To sum up:

1. Sam is a middle schooler.
2. I cry at everything.
3. Sam’s middle school is an overachieving jerk that assigns homework riiiight as the last year ends.
4. Fifth graders don’t graduate, they get promoted.
5. Don’t be a dick at promotion ceremonies.
6. If a group of kids ends a promotion ceremony with a song about being nice to kids who are different, I will dissolve.
7. I cry at everything.
8. Sam is too tall.
9. Chickens are awesome.

Three Weeks to Go

Is the end of the school year killing anyone else? I feel like I have two or three events to fit in every single day for the last three weeks of school. With three kids in three schools, that means that I don’t even get to kill three birds with one stone. I have three spring concerts. Three end of the year parties. Sixty-five field trips.

Seriously. These kids go on a LOT of field trips.

That doesn’t even include Geo Bowls, regular volunteer gigs, and 504 meetings.

This week alone, there was that great concert at Jack’s school, a field trip for Jack and a field trip for Quinn, and a performance of Shakespeare’s The Tempest by Sam’s fifth grade class.

I have to tell you, I think the play wins for best event of the week. It was phenomenal. Sam’s teacher created this fantastic 40-minute adaptation of The Tempest that the entire class took part in. It was absolutely amazing.

I took both Jack and Quinn out of school so they could go with me to watch, partly because I wouldn’t have gotten home in time to pick them up from school after the play and partly because they really wanted to go.

I wasn’t sure about their attention span and how well they would follow, you know, Shakespeare, but they both sat quietly on the floor and watched, rapt. Watching them in the audience was nearly as good for me as watching Sam in the play.

I don't have great photos of Sam in the play, but trust me, he was a star.

I don’t have great photos of Sam in the play, but trust me, he was a star.

I was beyond impressed by this fifth grade class. Every one of them did so well. Afterward, I could barely restrain Jack until the audience (made up of the other classes in Sam’s school) left because he was all, “I want to go hug Sam!”

(I did too.)

Methinks Jack was a little starstruck.

Methinks Jack was a little starstruck.

It was all very cool. Also, I feel I should let you know that I didn’t even read Shakespeare until I was in 9th grade. Kids these days.

After yesterday’s theater experience, today I chaperoned the second grade field trip to the Natural History Museum. Parts of it were a lot of fun. Quinn made it about 3/4 of the way through before he melted down.

I think I took this photo on the cusp between "Field trips are fun! I am having a great time!" and "I HAVE TO GET OUT OF HERE RIGHT NOW."

I think I took this photo on the cusp between “Field trips are fun! I am having a great time!” and “I HAVE TO GET OUT OF HERE RIGHT NOW.”

Quinn pretty seriously lost his shit right in the middle of the dinosaur exhibit. Poor guy.

Before we embark on next week’s many elementary school adventures, we’re talking a little Memorial Day weekend vacation to Hershey Park. This will be my kids’ first time at an amusement park. I imagine that is will go spectacularly.

Spectacularly good or spectacularly bad, that remains to be seen.

Honestly, considering my family, we’ll probably have a little bit of both. And that’s perfectly all right by me.

In Dreams

Ahem.

I would like to do a little bragging about Sam for a minute. He has been playing flute for a couple of years now and today at his school’s spring concert, he had his first solo. He has been practicing really hard. He was having a little trouble for a while, but after we figured out that his flute needed to be adjusted—not him—it all came together.

See Sam perform In Dreams from Lord of the Rings at his concert. (Also see my finger in front of the lens.)

I’m so proud.

Sam As Sibling

There is one thing I forgot to tell you about my presentation at Sam’s school last week.

See, Sam is such a wonderful kid and I don’t know that he always believes that, so I took this opportunity to say some nice things about him in front of his class. The book the class had read, Rules, is specifically about a sibling of a kid with autism, so lobbing some nice words Sam’s way was well within the subject matter at hand.

It looked like I was talking to the class at large, but, in fact, I was talking to Sam.

I told them that Sam sometimes ends up with extra responsibility. That he sometimes has to take care of Quinn if I’m chasing Jack down. (For example, the other night at Quinn’s school’s reading night where I looked up and found Jack gone. When I found him two hallways away (kid is fast), he said he was going to the car. I’m guessing that the room was too much for him.)

I told them that Sam sometimes has to help with Jack as well—and that Jack looks up to Sam.

I told them that Sam has patiently spent a ton of time in waiting rooms and used to do his homework there more often than at home.

I said that it can be hard to have a sibling with autism because sometimes they do embarrassing things, and he nodded.

I told the class that Sam has been a wonderful leader and teacher to his brothers and that he has always gone out of his way to include his brothers and that he is wonderful for that. I talked about how Sam does a really lovely job explaining Jack to his friends.

I’m hoping that while I was telling his classmates these things, that Sam heard me telling him that I see him. That I really, really SEE how good he is.

Because, oh lord, he is so good.

*****

I also wrote about Sam at White Knuckle Parenting today, where I wonder if gifted programs are too much pressure or just right. (In case you’re wondering, I don’t have the answer.)

Autism, the 5th Grade, and a Lot of Hope

One of my missions in life is to spread the idea of autism awareness and acceptance and I have found that it is easiest to spread propaganda to children, so I am always on the lookout for opportunities to go into classrooms and talk.

I was poking through Sam’s desk at his fifth grade back-to-school night earlier this school year when I heard something that made my ears perk up. The teacher was running through some of the things they’d be doing over the course of the year and he mentioned that they would be reading a book called Rules, about a girl with an autistic brother.

The reason, of course, that I perked up is because I KNOW A KID WHO HAS AN AUTISTIC BROTHER! I went home and ordered the book so I could read it ahead of time to have an idea of what he was going to be learning so I could either support or combat the message.

The book was okay. It did have a nice message and I think it is worthwhile for kids to read, but the kid with autism was the least fleshed out character in the book. (The phrase “fleshed out” kind of freaks me out, but I can’t think of anything better, so I’m sticking with it. Other words that upset me: “slacks” (as in pants), “gum” (gum in general bothers me), and “wad.” *shudder*)

I asked Sam if he would be cool with me going into the class to talk about Jack and autism and if it would be okay with him if I told his classmates that I have autism as well. He told me yes and then immediately went in on his own and asked his teacher if I could come in to give a talk.

Several months later, when the class was actually reading the book, I contacted the teacher, we talked a little, and I was all set to go in last Friday to TALK ABOUT AUTISM.

You know how sometimes something sounds like a great idea until the night before at 1 am when you’re desperately trying to figure out what to present and your mind is a blank and you start to panic, because these fifth graders are scary.

See, I’ve done these talks before, but I’ve done them in front of kids who know Jack or educators who have a working knowledge of kids with autism. These particular fifth graders were more scary than the first, but less scary than the latter. These fifth graders are Sam’s highly gifted class, so they’re a fun little quirky bunch themselves, but they are clever enough to be intimidating.

I’m not going to keep you in suspense; it went great. Sam’s teacher had given me 45 minutes and a list of questions from the kids. The list was great, because I am a completist and in my head I knew that I had to compress the science, ethics, and culture of autism into 45 minutes, minus Q&A. The questions focused me a little bit and let me eliminate some subtopics.

To tell you a little something about this group of kids, I should tell you that I got there ten minutes early, when half the class was at instrumental music and half the class was working quietly at their desks. And when I say “working quietly,” I mean that it was, like, “children of the corn creepy” quietly. These kids are pretty badass.

Eventually everyone showed up and I started talking. The smartest thing I did was to tell them that they could ask questions at any time and about anything, because they did and it turned what could have been a long, boring talk into a really interesting discussion. It was awesome. I love these kids.

I also got their attention right up front when I told them I had a kind of autism called Asperger’s. I could almost hear the clicks of their eyes falling into place on me. There I was, a real-life autistic person, right in front of them! It turns out that some of them also knew autistic people in their own lives…friends, siblings of friends, an uncle in Connecticut…plus some of them had met Jack. It was cool that they were able to ask questions from their own experience.

I had considered using MOM-NOS’ hair dryer/toaster analogy but decided against it for this group. I did briefly use Four Sea Stars’ different video game platform analogy to show them how typical brains and autistic brains are more alike than different, but that they do things differently.

As in Four Sea Stars’ analogy, I called all of them Nintendo Wiis (I think Wiis are more social than other gaming platforms) and I said I was an Xbox and then I talked about how Wiis are better at some things and Xboxes are better at some things, but that it can be hard for the Wiis to talk to the Xboxes and vice versa.

I really think they got it, but there was some dissent because certain people wanted to be iPads and then I had to call Sam a Playstation because he was being difficult, but I think it all kind of proved my point.

Mostly what I did was walk through the common components of autism: social difficulties, communication impairment, repetitive behavior and all that that entails, and sensory issues. I went into details about all of those things and addressed the kids’ questions when they came up and tried to explain the why of it all.

One of the questions the kids had sent home ahead of time was, “What is it like to have autism?” I hope that I was able to answer that question with some of the details and anecdotes that I shared with them. Somewhere in there, I even talked to them a little bit about autistic culture, such as how autistic people have a custom of flapping their hands to indicate applause instead of clapping.

Naturally the kids had asked questions about causes and cures and treatments and the more practical aspects. They had also asked when autism was first recognized, which was so interesting to me, precisely because that never would have crossed my mind to tell them. Overachievers, every single one of these kids.

I loved that these kids were very interested in and open to the idea of autism as not just debilitating. In fact, one of the questions that had come home was, “What are some of the advantages that autistic people have over ‘normal’ people?”

Those who knew people with autism had some very specific questions. One kid wanted to know why the kid he knew was aggressive and hugged so hard. One of Sam’s friends had a question about Jack rolling around in his blanket on the floor the first time he’d come over to our house.

I had asked Jack what he wanted me to tell the kids about his autism and he said, “my humor,” which…AWESOME, right? So I told them that and explained that maybe the biggest advantage of autism is seeing things in a different way, which lets you come up with some great ideas, humorous or otherwise. Then I mentioned Albert Einstein, as you do.

Sam’s teacher had recently read the new New York Times Magazine story, “The Autism Advantage” (don’t wreck the ending; I haven’t read it yet) and spoke a little bit about that. Then he brought up The Big Bang Theory and I’m pretty sure that every kid in the class is going to go home and make their parents let them watch it (that’s what happened at my house) and 15 references to “coitus” later, I’m going to start getting phone calls. (I suggest letting your kids watch the Penny Flower episode; it’s one of the less inappropriate ones.)

I just had a couple of minutes left so it was time for my big finish. My last few sentences are some of the most important in my whole presentation, so I wanted to make sure I got to them.

“I want to tell you how to be a friend to someone with autism,” I said. “You can be a friend by including them, by understanding if they need extra time or if they are insistent on doing things a certain way. You can acknowledge people with disabilities and give them a warm smile. You can assume that they are intelligent.

“But mostly what you can do is create an environment where it is okay to be different. You can do that by being friends with people who are different or by defending them and treating them and their ideas with respect.

“Or you can do it by being different yourself.

“I look around this room and see an amazing group of people. Each of you are different and unique and special and wonderful. I want you to make your classroom and your school and your neighborhood and your families places where it is okay to be different. Know that YOU can make a difference. Go forth and be unique. That will make the world a better, safer place for people with autism.”

I stopped there and I thanked them. I thanked them for their questions and conversation. I thanked them and the teacher for being such a good audience and for letting me come in and talk to them. I thanked them for being such an open audience.

And then? Then? Oh, my God, they started flapping their hands.

A few people had started clapping, but more than half the class flapped their hands over their heads instead. And once the clappers saw this, they stopped clapping and started flapping as well.

There are absolutely no adequate words to describe what I felt in that moment. I mean, joy obviously. And hope, God,  yes, hope. But I can’t describe the amazement I felt. They got it. They really got it.

On the drive home, I realized something: THAT is why I keep volunteering to do these talks. THAT is why I am willing to muscle through the anxiety that I suffer before these things. THAT is why I believe that my mission to spread autism awareness and acceptance matters.

Because I believe what I told them: I believe that they can make a difference. I believe that one person at a time, moved ever forward by ripples, this message will spread. I am so proud and grateful to get to be a part of it.

Let’s Not Have a Party—Let’s Have a Melee!

Imagine you got really lazy about planning your oldest son’s 11th birthday party and two weeks before the date, you realized that you had to GET ON THAT, STAT?! I imagine that being the smart person that you are, you would probably decide to invite a class of 26 students into your home in mid-October—a day that could be gorgeous or could be rainy—and you would plan activities like dodgeball, because WHAT COULD GO WRONG WITH THAT?

Well, YOU might not do that, but clearly *I* would.

I bought a bunch of small rubber balls and Alex picked the dog up and put her away so she wouldn’t steal all the Oreos and that’s what we did.

Cassidy was mightily put out.

The dog was all, “But I WANT Oreos!”

I would like to report that only one head injury was sustained.

That didn’t happen during dodgeball though. The head injury happened during the full-fledged melee that occurred when said class (about 15, plus my three, came) discovered our cache of Nerf weapons and assorted short swords. It was honestly like nothing I’d ever seen before. It was kind of like that scene at the very beginning of Fellowship of the Rings that explains about the Rings of Power and how that one ring ruled them all, except instead of Sauron and that king who didn’t want to throw the ring away, you had Sam and a bunch of his little cohorts fighting over nothing.

It was AWESOME.

Warrior Sam

I actually took this photo much later in the day, shortly after the kids found the costume chest.

After the head injury (he’s okay), I wanted to calm the party guests down, so I put down a little line of cones, divided them into two teams and started up a few rounds of dodgeball. As you do.

No one got hurt or terribly upset during that whole thing, so I decided to move them on to Red Rover. Remember Red Rover? It wasn’t until kids started wringing their hands, loudly ranking their peers in order of weakness, and a couple of them got clotheslined that I remembered that I totally hated that game when I was a kid.

Regardless, it’s been passed on to a new generation that wasn’t aware of it before. Yay, me!

Fortunately, before I was able to introduce something else brilliant, like throwing knives, the pizza arrived and everyone chilled out and ate some food. Yet, as Red Rover follows dodgeball, cake follows pizza and the chill diminished. It has never happened to me before that I wasn’t able to clear a path to the table for the birthday kid to blow out his candles, but this time I was swarmed, so we had an impromptu standing ceremony.

cake

Sure, we can do it here.

I think that the cake bottleneck happened partly because several kids were watching Mr. Free-fall From Space on the computer between our kitchen and dining room. Don’t forget that this was a party made up of Sam’s overachieving buddies from school. (It seems rude to call children that aren’t mine “nerdlingers.”)

Jack watches a free-fall from space

Don’t get any Xtreme Stuntz ideas, nerdlinger Jack.

I’m not kidding when I say the chill diminished. One girl was actually walking around saying, “Buzz, buzz! I’m buzzing! Buzz, buzz!” It looked a little bit like a spontaneous water fight was going to break out, so I quickly organized the troublemakers into teams for kickball. Not all the kids wanted to play, so Alex had to fill in at second base at one point. Dude. That guy can NOT catch a kickball.

It was embarrassing, really.

(I’m just trying to get you your loveable oaf credibility back, sweetie.)

Things were going pretty well. Sam was super happy, Quinn had run away to sneak time with his DSi…

I SEE YOU, QUINN.

I SEE YOU, QUINN.

…and Jack had departed to his sensory happy place…

Happy, happy, sand, sand, hammer, hammer, rock...

Happy, happy, sand, sand, hammer, hammer, rock…

…when Alex interrupted the kickball game practically mid-pitch to shriek, “HE’S GETTING READY TO JUMP! HE’S GETTING READY TO JUMP!” and 15 scientists-in-training went thundering into the house to watch a guy sit in a capsule for the next 15 minutes. Parents started arriving and I was all, “I swear we haven’t been making them watch this for the full two hours,” but I don’t know how convincing I was considering some of the kids really didn’t want to leave before the dude exited his capsule.

Alex is the HEAD nerdlinger.

Alex is the HEAD nerdlinger.

Oh, and I sent each kid home with his or her very own megaphone. Because I like to SHARE.

SHOUT!

I’m the head jerk.

No matter how hastily tossed together, this party was a blast. Sam has such a good group of kids in his class. And the party was perfectly him. We all had such a great time. Happy birthday, Sam! Thanks for making life so fun!

birthday cat

Glitter cat makes everything awesome.

But Sam makes it awesomer.

An Emotional Evening in Stimeyland

Tonight was back-to-school night at Jack’s school. This is the third back-to-school night I’ve been to in a week. It has been a little hectic. Also, at back-to-school night for 5th graders in the highly gifted program (Sam, yesterday), the evident goal is to make all the parents FREAK THE FUCK OUT over applying to highly gifted middle schools.

Mission accomplished.

But this isn’t that post. This is about Jack’s back-to-school night, which was cool. Half of his class showed up, so there were three of us in the room. I also got to see the lava lamp by the teacher’s desk that Jack is obsessed with.

But this isn’t that post either. This is about the instrumental music meeting that took place before the class meeting. Kids have the option of playing an instrument in 4th grade. I was kind of dreading Jack wanting to play an instrument because I was imagining epic battles during practice time.

I asked him though if he wanted to play an instrument though, because he gets to choose if he wants to play an instrument. He said he didn’t want to. But then he came home a few days later with a sheet on which was written and circled, “DRUMS.”

Because of course.

I spent a little while mourning my quiet house and then I started to get excited. And Jack was excited. And I was excited that Jack was excited. And I figured that this is something he might actually like to practice. Because that kid LOVES drums. I have a photo of him with every single street performer drumming on buckets that we have ever passed.

Boston, 2011

I showed up for the instrumental music meeting tonight all excited to learn what kind of drum we had to procure for practice. What I learned instead was the philosophy behind not offering drums as an instrumental music option in elementary school, which is weird, because it was an adult who wrote “DRUMS” on his page and circled it.

I went to the hallway and texted Alex to tell him that Jack couldn’t take drums and then I stared at my phone a little more, trying to pretend that I wasn’t broken up.

Because Jack was excited about something that would take extra work and he still wanted to do it. I don’t give a shit if elementary schools don’t want to offer drums. But don’t write down “DRUMS” and then tell the autistic kid he can’t play them. I was already dreading the conversation with him. I imagined it was going to involve across the board disappointment.

Then a nice lady who turned out to be the art teacher saw me looking sad and said, “Are you okay?”

And….

Do my tears surprise ANYONE?

Then she took me to see the (non-instrumental) music teacher who gave me a tissue and I cried even harder, because they were SO nice to me. And they both listened to me and told me they’d met Jack and the music teacher told me how Jack had played the African drums in music and was totally into them and how she could totally see that music is important to him and this all made me cry even more and then she told me about the percussion class they hold once a week before school starting in October.

How great is that? That might be even better than instrumental music drumming. They’re going to have a DRUM CIRCLE.

I managed to pull myself together in time for the full-fourth grade presentation at which they showed a slide that said, “Homework, participation, effort, and work study skills are not factored into grades,” followed by a list of tests and “informal observations” that ARE factored into grades.

I was more than pleased to see that homework thing, but the rest of that sentence was baffling to me. I guess you can’t have percussion class AND A’s (or B+’s) for effort all in one school.

Now, lest you think I hogged all of the emotional drama of the evening, you should know that a squirrel drowned in our swimming pool. Alex texted me a photo of the funeral.

They were sad.

Alex also texted me a photo of the squorpse, but I won’t subject you to that.*

This was all taking place at the same time as back-to-school night. See, we’re draining our pool right now and there’s only a few inches of water in it now, so there isn’t a cover on it. I’ve seen squirrels balancing on the edge of it, but I assumed that because squirrels can jump from one tiny branch to another tiny branch in a different tree that they wouldn’t fall into the swimming pool.

I was wrong.

The children fished the squirrel out with our pool net.

Related: We might need a new pool net.

Alex dug a grave, Quinn and Sam gathered flowers, and Alex presided over the funeral at which all four mourners said some words for the squirrel. (Jack: “Poor guy.” Quinn: “He was a good squirrel.”)

Rest in peace, wild squorpse.**

Welcome to Stimeyland, the home of many, many, MANY buried, deceased rodents, as well as a good number of tears. If we ever sell our house, we’re going to have to disclose that our yard is full of tiny, buried rodent skeletons.

Hopefully tomorrow will be better for everyone. Especially the squirrels.

* Squorpse: This term was originally coined by KC. I will probably never give her credit for it again. Tell everyone you know that I made it up.

** I totally invented the term “squorpse.”